为探究肾癌手术后随访护理的患者体验并制定最佳实践建议，我们组织了两个焦点小组，共有14名肾癌手术后随访经验的参与者，以获取患者对当前随访护理的看法。使用主题分析法来确定描述随访患者体验的一致性主题，并利用结果制定一套最佳实践建议。我们发现了六个主题（感觉被遗弃; 对计划的不确定性; 有关约会的焦虑; 护理的变化; 需要信息; 以及需要情感支持），描述了目前患者的体验以及当前护理可以改进的领域。尤其是，尽管大多数参与者认为他们的实 physical需求得到了满足，但许多人仍然遇到情感需求未得到满足和缺乏信息和资源的困境。这在手术后紧随其后的时期尤为明显，当时普遍存在被遗弃的感觉，并且在随访扫描和例行约会周围，这些都是焦虑的源头。我们的参与者还描述了对整个英国不同医院和中心之间缺乏一致性的担忧，随访护理的内容和质量存在差异。根据结果，我们制定了一份建议清单，通过对护理路径的较小改变来解决一些挑战。我们发现了肾癌手术后随访护理中的差距和变异，并制定了一套建议，如果实施，将改善这些患者的随访护理体验。2023年The Authors发表。 BJU International由John Wiley＆Sons Ltd代表BJU International出版。

To explore patient experience of follow-up care after kidney cancer surgery and to develop recommendations for best practice.We conducted two focus groups, including 14 participants with experience of kidney cancer follow-up after surgery, to elicit patient views on current follow-up care. Thematic analysis was used to identify unifying themes to describe the patient experience of follow-up, and the results were then used to develop a set of recommendations for best practice.We identified six themes (feelings of abandonment; uncertainty about the plan; anxiety about appointments; variation in care; a need for information; and a need for emotional support) that described current patient experience and areas in which current care could be improved. In particular, while most of the participants felt that their physical needs had been met, many had struggled with unmet emotional needs and a lack of information and resources. This was especially noted in the period immediately following surgery, when feelings of abandonment were common, and around follow-up scans and routine appointments, which were a source of anxiety. Our participants also described concerns about the lack of consistency between different hospitals and centres around the United Kingdom, with differences in the content and quality of follow-up care. Based on the results, we developed a list of recommendations to address some of the challenges described through relatively minor changes to the care pathway.We identified gaps and variability in current follow-up care after kidney cancer surgery, and have developed a set of recommendations that, if implemented, would improve the follow-up care experience for these patients.© 2023 The Authors. BJU International published by John Wiley & Sons Ltd on behalf of BJU International.