研究动态
Articles below are published ahead of final publication in an issue. Please cite articles in the following format: authors, (year), title, journal, DOI.

“Management of the patient with urostomy: Caregiver needs during the three months after discharge. A qualitative study.” 在病人出院后三个月内管理有输尿管造口的患者:一个定性研究。

Management of the patient with urostomy: Caregiver needs during the three months after discharge. A qualitative study.

发表日期:2023 Feb 22
作者: Tatiana Bolgeo, Federico Ruta, Denise Gatti, Francesca Gambalunga, Laura Iacorossi, Roberta Di Matteo, Salvatore Cotroneo, Carmelo Boccafoschi, Antonio Maconi
来源: BIOMEDICINE & PHARMACOTHERAPY

摘要:

为了研究患者出院后首3个月内进行根治性膀胱切除术和泌尿道重建手术的看护者的经历和培训需求,本研究采用了现象学设计方法,通过开放式访谈和描述性分析。将现象学应用于经验研究需要研究者探索参与者叙述的经验事实。本研究遵循规范化定性研究的标准,即32项访谈和焦点小组清单。研究对象包括三家意大利医院收治的膀胱癌患者的看护者。数据收集时间从2020年3月至2022年3月。共有52名来自三家医院的患者进行了膀胱切除术和泌尿道重建手术的看护者参与了该研究,其中男性41人,女性11人。数据分析得出了三个主题和子主题,包括看护者生活经历的各个方面: 1) 承担家庭成员不可或缺的负担,2) 感觉被机构抛弃,3) 因工作负担而感到疲劳和不愿意照顾亲人。我们的研究表明,患有膀胱癌和尿液造口的患者出院后前3个月,其看护者非常担心和紧张。尽管接受了医院的培训计划,看护者仍然无法认识到新获得的技能,难以应用。需要进一步研究。
To examine caregivers' experiences and training needs after radical cystectomy with urinary diversion for the first three months following the patient's discharge.This study applied a phenomenological design approach through open-ended interviews and descriptive analysis. Phenomenology applied to empirical research requires researchers to explore the empirical facts narrated by partici-pants. This study followed the Consolidated Criteria for Reporting Qualitative Research guidelines, a 32 - item checklist for inter-views and focus groups. The study population included caregivers of bladder cancer patients, admitted to three Italian hospitals. Data were collected between March 2020 and March 2022.Fifty-two caregivers of patients who underwent cystecto-my with urinary diversion from three Italian hospitals (41 males and 11 females) participated to the study. The data analysis con-verged in the identification of three themes - with sub-themes -that included various aspects of the caregiver's lived experiences: 1) living with the burden of being indispensable, for the family member, 2) feeling abandoned by institutions, 3) tiredness and less willingness to look after the relative due to work burden.Our study demonstrates that the caregiver of a patient with bladder cancer and urostomy in the first three months of hospital discharge is very worried and stressed. Despite the training program received in hospital, the caregiver does not recognize the newly acquired skills and has difficulty applying them. Further study would be required.