有癌症的母亲:一项交叉混合方法研究,调查角色需求和感知的应对能力。
Mothers with Cancer: An Intersectional Mixed-Methods Study Investigating Role Demands and Perceived Coping Abilities.
发表日期:2023 Mar 22
作者:
Athina Spiropoulos, Julie Deleemans, Sara Beattie, Linda E Carlson
来源:
Cancers
摘要:
患有癌症的母亲报告感到内疚,因为未能成功平衡他们的家长角色和癌症。本研究利用了横断面混合方法设计和交叉性框架,调查了患有癌症的母亲所扮演的多重角色和其感知的应对能力。参与者包括被诊断有任何类型或阶段癌症的母亲,正在治疗或≤3年后治疗,并与年幼子女(<18岁,在家中居住)经历癌症相关的残疾。参与者完成了问卷调查、半结构化面谈和可选的焦点小组。报告了描绘性统计分析、相关分析和主题感性分析。参与者(N = 18)平均年龄为45岁(标准差 = 5.50),67%正在接受治疗。他们的角色参与度(M = 42.74,±6.21)、角色满意度(M = 43.32,±5.61)和自我效能(M = 43.34,±5.62)低于总体人口得分50分。角色参与度越高、满意度越高,它们之间的正相关性就越高(r = 0.74, p ≤ 0.001)。定性分析揭示出母亲们保持了大部分角色,并且他们的生活质量取决于他们通过情绪和问题导向的应对来平衡这些角色的能力。我们开发了交叉角色应对母亲癌症(RCMC)模型,该模型具有潜在的研究和临床实用价值。
Mothers with cancer report guilt associated with failing to successfully balance their parental roles and cancer. This study utilized a cross-sectional mixed-methods design and intersectional framework to investigate the multiple roles that mothers with cancer assume and their perceived coping ability. Participants included mothers diagnosed with any type or stage of cancer, in treatment or ≤3 years post-treatment, and experiencing cancer-related disability with a dependent child (<18 years, living at home). Participants completed a questionnaire battery, semi-structured interview, and optional focus group. Descriptive statistics, correlations, and thematic inductive analyses are reported. The participants' (N = 18) mean age was 45 years (SD = 5.50), and 67% were in active treatment. Their role participation (M = 42.74, ±6.21), role satisfaction (M = 43.32, ±5.61), and self-efficacy (M = 43.34, ±5.62) were lower than the general population score of 50. Greater role participation and higher role satisfaction were positively correlated (r = 0.74, p ≤ 0.001). A qualitative analysis revealed that the mothers retained most roles, and that their quality of life depended on their capacity to balance those roles through emotion-focused and problem-focused coping. We developed the intersectional Role Coping as a Mother with Cancer (RCMC) model, which has potential research and clinical utility.