在终末期癌症患儿中探索死亡经验和理解，有助于为他们提供适当的照顾。但是，大多数研究都着眼于家长和医疗保健专业人员的视角，很少有研究关注儿童在生命终末阶段的经历。为了深入了解有关癌症患儿生命终末阶段的经验和对死亡的看法，我们开展了一项解释性定性研究，采用半结构化访谈方法，使用反思性主题分析法进行数据分析。该研究在浙江大学医学院附属儿童医院肿瘤外科进行。研究对象为10名年龄为8-17岁的终末期癌症患儿。从研究结果中确定了四个主题（八个子主题）:(1) 面对死亡的无助感(孤独，失去控制); (2)渴望与他们离开的世界联系(不愿被遗忘，自我价值感); (3)对死亡的看法和态度(与亲人分离，接受死亡); (4)对未来生活的期望(提高舒适度，实现愿望)。终末期癌症患儿具有强烈的孤独感和渴望联系离开的世界的愿望。儿童的看法和态度的差异表明，医疗保健专业人员应关注他们的经历和需求，并为儿童和家庭提供个性化的治疗和康复服务，以提高他们的生活质量。

Exploring the experience and understanding of death in children with terminal cancer is important to provide them with appropriate care. However, most studies have focused on the perspectives of parents and healthcare professionals, and few have focused on the end-of-life experiences of children.To advance the understanding of end-of-life experiences and perceptions of death in children with cancer.Interpretative qualitative study using semi-structured interviews. Data were analyzed using reflexive thematic analysis.The study was conducted at the department of oncological surgery, Children's Hospital, Zhejiang University School of Medicine. Ten children aged 8-17 with terminal cancer were included in the study.Four major themes (and eight sub-themes) were identified from the findings: (1) helplessness in the face of death (loneliness, loss of control); (2) desire to connect with the world they left (reluctantly to be forgotten, sense of self-worth); (3) perceptions and attitudes toward death (separating from loved ones, embracing death); (4) expectations of future life (promoting comfort, fulfilling wishes).Children with terminal cancer have a strong sense of loneliness and a desire to connect with the world they have left behind. Differences in children's perceptions and attitudes about death suggest that healthcare professionals should focus on their experiences and needs and provide personalized palliative care services to children and their families to improve their quality of life.