研究动态
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脑瘤患者及其家庭成员的心理社会支持:医疗专业人员的观点。

Access to psychosocial support for people with brain tumor and family members: Healthcare professional perspectives.

发表日期:2023 Apr 21
作者: Katarzyna M Lion, Kerryn E Pike, Haryana M Dhillon, Eng-Siew Koh, Mark B Pinkham, Joanne Shaw, Georgia K B Halkett, Tamara Ownsworth
来源: Brain Structure & Function

摘要:

持续获得心理社会支持对于维护脑肿瘤患者及其家人的幸福感至关重要,然而对于心理社会护理的了解仍然有限。这项定性研究旨在从澳大利亚医疗保健专业人士的角度,了解特定于脑肿瘤患者的心理社会支持途径。对21名在为脑肿瘤患者及其家庭成员提供医院和社区服务的医疗保健专业人士进行了半结构化访谈。对访谈内容进行了编码和主题分析。找到的三个主要主题是:(1)将人们纳入现有途径的护理系统中所面临的挑战;(2)长期护理协调和跨学科联系的好处;以及(3)脑肿瘤影响整个家庭。尽管存在既定的心理社会护理途径,但低级别胶质瘤和良性肿瘤的个体疾病过程中,服务获取情况存在差异并缺乏连续性。医疗保健专业人士认识到有必要提高护理协调和跨学科心理社会护理的获取,并根据脑肿瘤患者及其家人不同的需求进行个性化的服务。© 2023 The Authors. Psycho-Oncology published by John Wiley & Sons Ltd.
Ongoing access to psychosocial support is important to maintain the well-being of people with brain tumor (PwBT) and their families; yet, there is limited knowledge of psychosocial care access. This qualitative study aimed to develop an understanding of psychosocial support pathways specific to PwBT from the perspectives of Australian healthcare professionals.Semi-structured interviews were conducted with 21 healthcare professionals working in hospital and community services supporting PwBT and their family members. Transcribed interviews were coded and analyzed thematically.The three major themes identified were: (1) Challenges in fitting people into the care system within existing pathways; (2) Benefits of longer-term care coordination and interdisciplinary connections; and (3) Brain tumor affects the whole family. Despite established psychosocial care pathways, service access varied and lacked continuity for individuals with lower-grade glioma and benign tumors across the illness trajectory.Healthcare professionals recognize the need for improved access to care coordination and multidisciplinary psychosocial care tailored to the varying needs of PwBT and their families.© 2023 The Authors. Psycho-Oncology published by John Wiley & Sons Ltd.