研究动态
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帕金森氏病人的个体中心导航员项目:一项试点研究。

Person-Centered Navigator Program for People with Parkinson's Disease: A Pilot Study.

发表日期:2023 Apr 21
作者: JuHee Lee, YonJi Kim, Yielin Kim, Yujin Suh
来源: Disease Models & Mechanisms

摘要:

虽然帕金森病是慢性疾病且需要终身综合护理,但专门针对帕金森病(PD)的导航员计划有限。由于大多数病人导航文献侧重于肿瘤治疗并基于西方背景,因此本研究旨在开发一种针对PD的以人为中心的导航员计划,并在韩国背景下评估其初步结果和可行性。该计划使用“分析、设计、开发、实施和评估”模型和“专业导航框架”开发。最初,招募了28名参与者参加为期8周的导航员计划。保留率为82%。社交功能在基线后12周得到显着改善。参与者对该计划表示高度满意,表明它得到了良好的接受。本研究根据PD特定需求和韩国背景系统地开发了导航员计划。未来的模型应着重于个人和参与属性。针对患有PD的人的导航员计划代表了适当且不断发展的医疗干预。
There are limited Parkinson's disease (PD)-specific navigator programs, although PD is chronic and requires life-long comprehensive care. As most patient navigation literature focuses on oncology and is based in the West, this study aimed to develop a person-centered navigator program for PD and evaluate its preliminary outcomes and feasibility in the Korean context. The program was developed using the "analysis, design, development, implementation, and evaluation" model, and "professional navigation framework." Initially, 28 participants were recruited to participate in an 8-week navigator program. The retention rate was 82%. Social function was significantly improved 12 weeks after baseline. Participants reported high satisfaction with the program, suggesting that it was well-accepted. This study systematically developed a navigator program based on PD-specific needs and the Korean context. Future models should focus on personal and participatory attributes. Navigator programs for people with PD represent appropriate and evolving healthcare interventions.