研究动态
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糖尿病和癌症共同管理教育:利用患者激活学习系统(PALS)帮助乳腺癌患者。

Diabetes and Cancer Co-management Education: Leveraging the Patient Activated Learning System (PALS) for Patients with Breast Cancer.

发表日期:2023 Apr 26
作者: Julia Rothman, Michael Roudik, Caroline Zeng, Shakirah Ssebyala, Laura C Pinheiro
来源: DIABETES & METABOLISM

摘要:

超过70%的癌症患者存在一种或多种合并症,糖尿病是其中最常见和负担最重的合并症之一。然而,现有的以患者为中心的教育材料常常未能认识到如何共同管理癌症和糖尿病,导致患者感到不知所措,迫切需要指导。我们的团队利用Patient Activated Learning System(患者激活学习系统,PALS),一个以患者为中心的公开平台,生成了关于共同管理糖尿病和癌症的以患者为中心的教育材料,来填补这一知识空白。在15个患者访谈记录的基础上,我们开发了八个可重复使用的知识对象(RKOs),用于回答患者关于共同管理糖尿病和癌症的各种常见问题。这些RKOs是与研究人员和临床医生合作编写的,然后由专家进行同行评审。这八个基于证据的RKOs有潜力为患者提供支持癌症和糖尿病共同管理所需的知识。目前没有现有的以患者为中心的教育资源来帮助患者在癌症治疗期间管理他们的糖尿病。我们利用Patient Activated Learning System(PALS)生成了基于证据的、面向患者的教育信息,这些信息由研究人员和临床医生编写,由专家进行同行评审。这些教育内容将为患者支持癌症和糖尿病共同管理提供支持。© 2023. 作者在美国癌症教育协会的独家许可下使用。
More than 70% of cancer patients have one or more comorbid conditions, and diabetes is one of the most common and burdensome comorbidities. However, existing patient-centered education materials often fail to acknowledge how to co-manage cancer and diabetes, leaving patients feeling overwhelmed and searching for guidance. Our team sought to fill this knowledge gap by using the Patient Activated Learning System (PALS), a patient-centered, publicly available platform, to generate patient-centered education materials about co-managing diabetes and cancer. Using insights from 15 patient interview transcripts, we developed eight reusable knowledge objects (RKOs) for a variety of common questions that patients have about co-managing diabetes and cancer. The RKOs were written in collaboration with researchers and clinicians and then peer reviewed by experts. The eight evidence-based RKOs have the potential to equip patients with the knowledge to support cancer and diabetes co-management. There are no existing patient-centered educational resources to help patients manage their diabetes during cancer treatments. We filled this gap by using the Patient Activated Learning System (PALS) to generate evidence-based, patient-facing educational information that was written by researchers and clinicians and peer reviewed by experts. This educational content will support cancer and diabetes co-management for patients.© 2023. The Author(s) under exclusive licence to American Association for Cancer Education.