探究癌症患者认知康复干预对于相关认知改变的经验:一项解释现象学分析。
Exploring the experience of a cognitive rehabilitation intervention for cancer-related cognitive change in people living with cancer: An interpretative phenomenological analysis.
发表日期:2023 Aug 04
作者:
Andrea Joyce, Lindsey Burns, Kareena McAloney-Kocaman
来源:
Burns & Trauma
摘要:
有些癌症患者会经历与癌症相关的认知变化(CRCC)。最近开发了认知康复干预(CRIs)来帮助减轻CRCC的影响,未经治疗的话,会影响癌症治疗后的日常生活恢复。了解参与者的经验对于研究文献来说非常重要,但在研究文献中很少见。本研究旨在探讨那些经历过CRCC的人在接受CRIs治疗后的体验。本研究采用了定性现象学方法,通过对一家CRIs的6名自愿参与者进行深入、半结构化访谈来进行研究。研究邀请参与者讨论他们对CRCC的体验以及CRIs对他们的意义。通过解释性现象学分析对访谈进行了分析。研究结果揭示了4个关键主题。首先,“经历和应对孤立感”涉及到患者对治疗后的被遗弃感的反思以及通过参与CRIs来找回归属感。第二,“身份”探讨了参与者关于自我丧失和干预措施带来的赋权感的反思。第三,“认知和身体平衡”包括参与者作出的计划和选择,以及他们自己和CRIs应对策略的支持,以寻求对认知变化的接受。最后,“课程反思”探讨了干预措施的结构、形式和交付方面的反思,着重于无障碍性、灵活性和包容性、以及沟通方面的两个子主题。所有参与者对他们的经验都有积极的反思。研究结果支持将这种CRIs进一步传播给卫生专业人员,并在该人群中推行以更好地支持自我报告的CRCC问题。未来的定性研究应该探讨CRIs干预措施的长期影响。
Some cancer patients experience cancer-related cognitive change (CRCC). Cognitive rehabilitation interventions (CRIs) have recently been developed to help mitigate the impact of CRCC, which, untreated, can impact resumption of daily life post-cancer treatment. The experience of participants is important to understand but largely absent within research literature. This study aimed to explore how those with CRCC experience the phenomenon following completion of a CRI.This study comprised a qualitative phenomenological approach. This involved conducting in-depth, semi-structured interviews with 6 self-referred participants from one CRI. Participants were invited to discuss their experience of CRCC and what the CRI therefore meant to them. Interviews were analyzed using interpretative phenomenological analysis.Analysis of the findings revealed 4 key themes. (1) "Experiencing and addressing isolation" comprises reflections on posttreatment perceived abandonment and consequent feelings of belonging through CRI participation. (2) "Identity" explores participants' reflections around perceived loss-of-self and feelings of empowerment from the intervention. (3) "Cognitive and physical balance" comprises the planning and choices participants make, supported by both their own and CRI coping strategies as they seek acceptance of cognitive change. (4) "Course reflections" explore reflections on intervention structure, format, and delivery, focusing on 2 subthemes of accessibility, flexibility and inclusivity, and communication. All participants reflected positively on their experience.Results support further dissemination among health professionals and implementation of this CRI to better support self-reported CRCC concerns within this population. Future qualitative research should explore the long-term impact of CRI interventions.