研究动态
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家庭医疗癌症病患电子患者报告结局评估(e-PROMs)的障碍因素和促进因素:医疗专业人员感知的定性研究。

Barriers and facilitators of electronic patient-reported outcome measures (e-PROMs) for patients in home palliative cancer care: a qualitative study of healthcare professionals' perceptions.

发表日期:2023 Aug 04
作者: Letteria Consolo, Stella Colombo, Ilaria Basile, Daniele Rusconi, Tiziana Campa, Augusto Caraceni, Maura Lusignani
来源: BIOMEDICINE & PHARMACOTHERAPY

摘要:

在临终关怀中,患者报告的结果能够及早监测和管理对患者日常生活影响最大的症状;然而,在日常实践中采用电子患者报告结果测量(e-PROMs)存在几个障碍。本研究探讨了卫生保健专业人员(HCPs)在实施家庭临终关怀中患者报告结果测量的潜在障碍和促进因素的经验。本研究采用定性描述性设计。数据采集自按照Grol的概念框架组织的两个焦点小组。招募了参与米兰Fondazione IRCCS Istituto Nazionale dei Tumori家庭临终癌症护理的HCPs。数据经过反思性主题分析进行分析。共生成了245个编码,其中第一个焦点小组为171个,第二个焦点小组为74个。根据Grol的主题,结果被细分为子主题:创新、个人专业知识、患者、社会背景、组织环境,除了经济政治背景。第一个焦点小组有9名HCP参加,第二个焦点小组有10名HCP参加。根据这些参与者的观点,在实施的各个阶段,只要HCP们接受了适当的培训和支持,e-PROMs可以融入临床实践。他们在社会和组织背景方面确定了障碍,这是由于肿瘤终末期环境的独特性和难以捉摸的护理干预,同时也有很多促进因素,可以推动其中新技术的创新,并改善与患者和医疗团队的沟通。根据HCPs的观点,他们认为e-PROMs增加了患者护理和他们的工作价值;然而,仍然存在障碍,特别是与这些患者的脆弱性、技术系统的适用性、教育的缺乏以及护理低人性化的风险相关。© 2023年 BioMed Central Ltd., Spring Nature集团的一部分。
Patient-reported outcomes in palliative care enable early monitoring and management of symptoms that most impact patients' daily lives; however, there are several barriers to adopting electronic Patient-reported Outcome Measures (e-PROMs) in daily practice. This study explored the experiences of health care professionals (HCPs) regarding potential barriers and facilitators in implementing e-PROMs in palliative cancer care at home.This was a qualitative descriptive study. The data were collected from two focus groups structured according to the conceptual framework of Grol. HCPs involved in home palliative cancer care of Fondazione IRCCS Istituto Nazionale dei Tumori of Milan were enrolled. Data were analyzed using a reflexive thematic analysis.A total of 245 codes were generated, 171 for the first focus group and 74 for the second focus group. The results were subdivided into subthemes according to Grol's themes: Innovation, Individual professional, Patient, Social context, Organizational context, except Economic Political context. Nine HCPs attended the first focus group, and ten attended the second. According to these participants, e-PROMs could be integrated into clinical practice after adequate training and support of HCPs at all stages of implementation. They identified barriers, especially in the social and organizational contexts, due to the uniqueness of the oncological end-of-life setting and the intangible care interventions, as well as many facilitators for the innovation that these tools bring and for improved communication with the patient and the healthcare team.e-PROMs are perceived by HCPs as adding value to patient care and their work; however, barriers remain especially related to the fragility of these patients, the adequacy of technological systems, lack of education, and the risk of low humanization of care.© 2023. BioMed Central Ltd., part of Springer Nature.