“谢天谢地你们来了”。探讨增强版七天全科临终关怀服务对病人、家庭照顾者和工作人员的影响:一项混合研究方法的研究。
'Thank goodness you're here'. Exploring the impact on patients, family carers and staff of enhanced 7-day specialist palliative care services: A mixed methods study.
发表日期:2023 Sep 21
作者:
Catherine Walshe, Céu Mateus, Sandra Varey, Steven Dodd, Zoe Cockshott, Luís Filipe, Sarah G Brearley
来源:
PALLIATIVE MEDICINE
摘要:
在临终疾病患者接近死亡时,医疗服务的使用模式会发生变化,对非工作时间的服务需求增加。如何在非工作时间提供护理服务目前尚不清楚。本研究的目标是评估增强的7天专科姑息医疗服务的有效性和影响,并探讨相关服务的多种观点。本研究采用探索性纵向混合方法收集数据。研究包括一个准实验性的无对照前后研究和半结构化访谈。数据收集时间为2018年至2020年,地点为英国的两个地区的专科姑息医疗服务。分析了来自5601名独特个体的常规数据,并对患者(n = 19)、家庭照顾者(n = 23)和医疗专业人员(n = 33;n = 33时间点1,n = 20时间点2)进行了干预后的访谈。接受护理的人平均年龄为73岁,主要是白人(90%),患有癌症(42%)。干预期间,入院留观时间减少了0.16天,但住院次数增加了2.67次。女性住院时间比男性长了近3.5天,但住院次数减少了2.48次。患有癌症的人住院时间较短(减少了4天),入院次数减少了2次。定性数据中的主题包括服务的响应性、安抚、关系、回报性(患者、家庭照顾者和工作人员之间)和保持服务(工作人员)。增强的七天服务提供了高质量的综合姑息护理,对患者、照顾者和工作人员有积极的体验。
Healthcare usage patterns change for people with life limiting illness as death approaches, with increasing use of out-of-hours services. How best to provide care out of hours is unclear.To evaluate the effectiveness and effect of enhancements to 7-day specialist palliative care services, and to explore a range of perspectives on these enhanced services.An exploratory longitudinal mixed-methods convergent design. This incorporated a quasi-experimental uncontrolled pre-post study using routine data, followed by semi-structured interviews with patients, family carers and health care professionals.Data were collected within specialist palliative care services across two UK localities between 2018 and 2020. Routine data from 5601 unique individuals were analysed, with post-intervention interview data from patients (n = 19), family carers (n = 23) and health care professionals (n = 33; n = 33 time 1, n = 20 time 2).The mean age of people receiving care was 73 years, predominantly white (90%) and with cancer (42%). There were trends for those in the intervention (enhanced care) period to stay in hospital 0.16 days fewer, but be hospitalised 2.67 more times. Females stayed almost 3.5 more days in the hospital, but were admitted 2.48 fewer times. People with cancer had shorter hospitalisations (4 days fewer), and had two fewer admission episodes. Themes from the qualitative data included responsiveness (of the service); reassurance; relationships; reciprocity (between patients, family carers and staff) and retention (of service staff).Enhanced seven-day services provide high quality integrated palliative care, with positive experiences for patients, carers and staff.