研究动态
Articles below are published ahead of final publication in an issue. Please cite articles in the following format: authors, (year), title, journal, DOI.

土耳其和叙利亚儿科骨髓移植和肿瘤患者父母的生活质量。

Quality of life in parents of Turkish and Syrian pediatric bone marrow transplant and oncology patients.

发表日期:2023 Oct
作者: G Sezgin, A Yaylaci, I Unal
来源: Bone & Joint Journal

摘要:

治疗的成功取决于儿童癌症患者父母的健康状况。此外,移民需要应对战争的后果。我们的目的是比较在我们的骨髓移植和肿瘤科跟踪的叙利亚和土耳其儿童父母的 HRQoL。100 份 SF 36 问卷,每组各 50 份这项横断面研究于 2019 年 10 月和 2020 年 3 月进行。记录患者的人口统计学特征(性别、年龄、癌症类型、是否复发、随访持续时间)和父母的教育水平。使用 IBM SPSS Statistics 20.0 版进行分析。土耳其父母在身体机能、情绪健康、身体疼痛、总体健康和身体健康综合评分方面报告了更好的结果 (P < 0.05)。叙利亚组的父亲较多,两组之间的教育状况显着(分别为 P = 0.01、P = 0.001)。土耳其群体的生活质量和教育水平之间不存在相关性。在叙利亚父母中,初中毕业生的疼痛评分较高(P = 0.043)。在复发的情况下,虽然土耳其父母的身体功能评分下降,但身体角色功能评分上升(分别为 P = 0.0035、P = 0.005)。当孩子复发时,叙利亚父母的情绪角色功能和精力/疲劳评分均有所增加(两者P = 0.027)。 移民是一个复杂的问题。土耳其父母在身体机能、情绪健康、身体疼痛、总体健康和身体健康综合得分方面表现更好。筛查父母负担,帮助他们找到适当的支持服务对于改善患者及其父母的健康和生活质量至关重要。
The success of the treatment depends on the well-being of the parents in pediatric cancer patients. In addition, migrants need to deal with the consequences of war.Our purpose was to compare the HRQoL of parents of Syrian and Turkish children followed in our bone marrow transplant and oncology units.One hundred SF 36 questionnaires, fifty from each group were collected between October 2019 and March 2020 in this cross-sectional study. Demographic characteristics of the patients (sex, age, cancer type, presence of relapse, duration of follow-up) and education level of parents were recorded. Analyses were performed using IBM SPSS Statistics version 20.0.Turkish parents reported better results in physical functioning, emotional well-being, physical pain, general health, and physical health composite score (P < 0.05). There were more fathers in the Syrian group and education status was significant between the two groups (P = 0.01, P = 0.001, respectively). There was no correlation between QoL and education levels in the Turkish group. In Syrian parents, pain score was high in middle school graduates (P = 0.043). In the presence of relapse, although the physical function score decreased, the physical role function score increased in Turkish parents (P = 0.0035, P = 0.005, respectively). Syrian parents' emotional role function and energy/fatigue score were both increased when children had relapses (P = 0.027for both).Migration is a complex issue. Turkish parents were better in physical functioning, emotional well-being, physical pain, general health, and physical health composite score. Screening for parental burden, assisting them to find appropriate support services is essential in improving the health and QoL of both our patients and their parents.