研究动态
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告知或不告知静脉血栓栓塞 - 一项关于医疗保健专业人员和肺癌患者之间沟通的定性研究。

TO INFORM OR NOT TO INFORM about venous thromboembolisms - A qualitative study on communication between healthcare professionals and patients with lung cancer.

发表日期:2024 Nov
作者: Camilla Berggreen, Jonas Hermann Schrøder, Thomas Christensen, Weronika Maria Szejniuk, Mette Søgaard, Anette Arbjerg Højen, Lone Jørgensen
来源: THROMBOSIS RESEARCH

摘要:

静脉血栓栓塞(VTE)是癌症患者死亡的主要原因。尽管如此,研究表明癌症患者对 VTE 风险和症状了解不够,这可能会妨碍他们识别症状并迅速做出反应的能力。由于发生 VTE 的相对风险较高,加上健康素养水平较低,肺癌患者尤其容易受到伤害。本研究旨在探讨肺癌患者的 VTE 信息需求以及患者和医疗保健专业人员 (HCP) 如何就 VTE 进行沟通。通过对肺癌患者和 HCP 进行半结构化访谈来收集数据。所有参与者 (n = 20) 都是从肿瘤科招募的。使用 Ricoeur 启发的策略以归纳方式进行分析。患者对 VTE 有不同的信息需求,但 HCP 不会定期就 VTE 进行交流,因为该主题往往优先级较低。当患者表达需要或出现 VTE 症状时,医护人员会就 VTE 进行沟通。医护人员表示担心告知 VTE 会增加患者的情绪负担,而一些患者则强调为潜在并发症做好心理准备的重要性。该研究表明,医护人员必须在充分沟通 VTE 和不造成过度心理困扰之间保持平衡。然而,鉴于患者对 VTE 的认识通常有限,发起有关 VTE 沟通的责任必须落在 HCP 身上。版权所有 © 2024 作者。由爱思唯尔有限公司出版。保留所有权利。
Venous thromboembolism (VTE) is a leading cause of death among cancer patients. Despite this, studies show that patients with cancer feel inadequately informed about the VTE risk and symptoms, which may impede their ability to recognise symptoms and react promptly. Patients with lung cancer are especially vulnerable due to a high relative risk of developing VTE combined with a high prevalence of low health literacy. This study aimed to explore the VTE information needs of lung cancer patients and how patients and healthcare professionals (HCPs) communicate about VTE.Data was collected via semi-structured interviews with patients with lung cancer and HCPs. All participants (n = 20) were recruited from an oncological department. The analysis was performed in an inductive manner using a Ricoeur inspired strategy.Patients had varying information needs regarding VTE, but HCPs did not routinely communicate about VTE, as the topic tended to be lowly prioritised. HCPs communicated about VTE when patients expressed a need or presented symptoms of VTE. HCPs expressed concerns about adding to patient's emotional burden by informing about VTE, while some patients emphasised the importance of being mentally prepared for potential complications.The study demonstrates the challenging balance HCPs must maintain between adequately communicating about VTE and not causing undue psychological distress. However, given patient's often limited awareness of VTE, the responsibility to initiate communication about VTE must fall on the HCPs.Copyright © 2024 The Authors. Published by Elsevier Ltd.. All rights reserved.